Useful Links - Immunology

• Immune Thrombocytopenic Purpura (ITP)
• Primary Immunodeficiency

Immune Thrombocytopenic Purpura (ITP)

• Center for Platelet Function Studies
  The Center for Platelet Function Studies is an internationally recognized, multidisciplinary center for the study of platelet function by state-of-the-art methods. The Center undertakes both basic science and clinical research, including clinical trials of drugs, devices, and tests. It also performs studies in collaboration with pharmaceutical, biotechnology, medical device and instrumentation companies.
  
  
• ITP Foundation
  The ITP Foundation was established to raise awareness of Immune Thrombocytopenic Purpura (ITP), and provides assistance to families who have children and/or adolescents with ITP and who are in need of financial support to manage and treat the disorder. The ITP Foundation raises awareness of the disorder through local and national outreach efforts, such as sporting, social and educational events. The Foundation also sponsors endurance athletes who raise funds to further ITP research.
  
  
• ITP Society of the Children's Blood Foundation
  Founded in New York City in 1952, the Children’s Cancer and Blood Foundation (CCBF) is the first and largest charitable organization dedicated to supporting the care of children with cancer and blood diseases. The mission of the Children's Cancer and Blood Foundation is threefold: to support the comprehensive clinical care of children living with blood disorders, to foster research to help understand the causes of childhood blood disorders, and to sponsor the fellowship training of pediatricians in the subspecialty of pediatric hematology and oncology.
  
  
• ITP Support Association
  The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune (Idiopathic) Thrombocytopenic Purpura.
  
  
• Platelet Disorder Association
  This organization is devoted to delivering the most timely, accurate and comprehensive information about ITP and to assisting site visitors in meeting others who share their interests.
  
  

Primary Immunodeficiency

• American Academy of Allergy, Asthma & Immunology
  The American Academy of Allergy, Asthma & Immunology is the largest professional medical specialty organization in the United States, representing allergists, asthma specialists, clinical immunologists, allied health professionals, and others with a special interest in the research and treatment of allergic disease.
  
  
• Auto Immune Information Network
  A.I.N. is a non-profit organization specifically formed to help patients and family members with more than 149 known autoimmune diseases.
  
  
• Carimune®
  Carimune® NF is indicated for the maintenance treatment of patients with primary immunodeficiencies (PI), such as common variable immunodeficiency, X-linked agammaglobulinemia, and severe combined immunodeficiency, and for acute and chronic immune thombocytopenic purpura (ITP). This site provides prescribing information and authorized distributors.
  
  
• Children’s Immune Deficiency Foundation
  HEALINGKIDS.NET is a membership-based, international outreach community dedicated to provide enrichment to the lives of children with immune deficiencies and to offer family members a safe place to learn and interact.
  
  
• Clinical Immunology Society
  The mission of the Clinical Immunology Society is to facilitate education, translational research and novel approaches to therapy in clinical immunology, in order to promote excellence in the care of patients with immunologic/inflammatory disorders.
  
  
• DSAI -- German Self-Help Acquired Immunodeficiencies
  DSAI is a German organization that provides medical, psychological or personal assistance to individuals with immunodeficiencies. The organization also strives to provide early diagnosis and treatment. According to experts, about 100,000 individuals are affected with immune deficiencies, but only 1,400 have been diagnosed.
  
  
• European Federation of Immunological Societies
  The EFIS is an organization of international cooperation in the field of immunology.
  
  
• European Society for Immunodeficiencies
  The European Society for Immunodeficiencies (ESID) is a non-profit organization designed to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases, as well as to promote research on causes, mechanisms and treatment of these disorders.
  
  
• Guillain-Barre Foundation
  The Guillain-Barré Foundation provides support and assistance to patients with Guillain-Barré syndrome (GBS) or Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and their families. The foundation is committed to increasing knowledge and awareness in both the public and professional communities by providing print information and educational opportunities, sponsorsing worldwide meetings, lectures and support groups, hosting the biannual GBS/CIDP International Symposium, and encouraging new findings by awarding research grants for further study and experimentation.
  
  
• Immune Deficiency Foundation
  The Immune Deficiency Foundation (IDF) strives to improve the diagnosis and treatment of patients with primary immune deficiency diseases through research, education and advocacy.
  
  
• International Nursing Group for Immunodeficiencies
  The International Nursing Group for Immunodeficiencies (INGID) improves and extends the quality of nursing care of patients with primary immune deficiencies and increases the awareness and understanding of primary immunodeficiencies among nurses.
  
  
• International Organization for Patients with Primary Immunodeficiencies
  The International Organization for Patients with Primary Immunodeficiencies (IOPPI) is a global organization working to improve the quality of life for people with primary immunodeficiencies. The group works to improve access to early diagnosis and optimal treatment and care, supports and promotes the work of National Member Organizations (NMOs), and acts as a strong, effective global voice for NMOs.
  
  
• International Union of Immunological Societies
  The International Union of Immunological Societies (IUIS) is an umbrella organization for many of the regional and national societies of immunology throughout the world. The organization’s objectives are to: organize international co-operation in immunology and to promote communication between the various branches of immunology and allied subjects; to encourage, within each scientifically independent territory, cooperation between the Societies that represent the interests of immunology; and to contribute to the advancement of immunology in all its aspects. There are currently 54 Member Societies of IUIS, many of which belong to one of four Regional Federations encompassing Europe, Latin America, Africa and Asia-Oceania. Links with other international scientific bodies are promoted through the International Affiliate Members of IUIS, membership of the International Council for Science (ICSU) and formal liaison with the World Health Organization.
  
  
• Joint Council of Asthma, Allergy and Immunology
  The Joint Council of Asthma, Allergy and Immunology (JCAAI) informs allergists and immunologists of the critical socio-economic issues impacting their practices.
  
  
• Neuropathy Association
  The Neuropathy Association seeks to inform people impacted by neuropathy that others share their challenge. The group believes it is important to build connections that enable members to help one another by exchanging experiences and information.
  
  
• Primary Immunodeficiency Association
  The Primary Immunodeficiency Association (PiA) exists to support people living with Primary Immunodeficiencies. The group interacts with clinicians and immunologists, funds relevant research, and campaigns for the rights of its members in the UK.
  
  
• Rhophylac®
  Rhophylac® is a sterile solution of anti-D, also known as Rho(D) IgG or Rh factor, which affords protection from Rh-sensitization. Rhophylac can be administered by intravenous (IV) or intramuscular (IM) injection. Hemolytic disease of the newborn (HDN) is a serious medical condition that is caused by incompatibility between the blood of an Rh-negative pregnant woman and her Rh-positive fetus. HDN develops in the fetus when the IgG antibodies produced by the mother pass through the placenta and attack the red blood cells (RBCs) in the fetal circulation. Although HDN does not affect the mother, it can have serious consequences for her baby, such as anemia, jaundice, brain damage, heart failure and mortality.
  
  
• Sandoglobulin
  This site contains medical information on immunodeficiencies and is intended for health care professionals.
  
  
• Severe Combined Immunodeficiency
  SCID.net is an online information resource for Severe Combined Immunodeficiency.
  
  
• Vivaglobin®
  Vivaglobin® — the alternative to IVIg — is the first and only FDA-approved subcutaneous immunoglobulin that, with a doctor's approval, lets patients administer their treatment, in their home, on their own schedule.